Now look beyond that adorable smile and that blonde hair and his birthday boy shirt, and you may see those marks on his skin. Welcome to the world of Epidermolysis Bullosa. His Mom and Dad, Patrice and Matt, know it too well. I have been following their story at the William's Family Blog since shortly after Jonah's birth, and he has stolen my heart.
So, in honor of Jonah, some of the family friends are hosting an auction in his honor. Can you help out the organization coordinating the research for EB? If the answer is yes, get ready and check out the site that has been set up at Jonah's EB Auction.
Now you know, so go there.